Tag Archives: Albinism

BrightOcular correctscoloboma and blocks sun rays from ocular albinism

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BrightOcular correctscoloboma and blocks sun rays from ocular albinism

What is BRIGHTOCULAR?

BrightOcular is a United States patent intraocular implant made of a thin, flexible, biocompatible, colored medical grade silicone which has been developed to alter iris appearance for medical and cosmetic purposes.

The intraocular implant is used to treat or alleviate cases of heterochromia, ocular albinism, and other iris-related abnormalities by protecting the eyes from the harmful effects of sunlight in patients who suffer from high levels of photosensitivity.

The artificial iris implant covers up iris defects such as coloboma, severe iris atrophies, iridoschisis, and also allows for the change in eye color for cosmetic reasons.

Your eyes are one of the most important sensory organs of your body. They allow you to see and visualize the world around you.  There are people in this world who are not as fortunate and do not have fully functioning eyes.  Some diseases in the eye affect the way the iris forms and affects the amount of light approaching the eye.  This can cause extreme sensitivity to sunlight and cause major distress in vision.  There is a new implant released called BrightOcular that can change all of that.

BrightOcular is the only intraocular implant invented in the United States that can be used to permanently cover up iris defects such as coloboma, aniridia, ocular albinism, and eye trauma.  When the iris is deformed, the BrightOcular implant can be placed inside to play the role of an artificial iris.  Because of its patented structure and design, it will lay inside the eye in a stable fashion while preventing excess light from entering the eye.  Depending on the color of your eye, the proper color can be chosen. BrightOcular can also be used to cosmetically change the color of your eye even if you have healthy eyes.

What does this mean for patients with medical conditions? Patients can now have a healthy visual field without straining their eyes because of excess light.  No more sunshades, UV color contacts, or prosthetic color contacts to avoid the bright light and or cover their iris deformity.

With BrightOcular, sunny days become bearable, enjoyable, and beautiful.  Under a new program for BrightOcular, patients with medical conditions that can benefit from the BrightOcular implant can have the procedure done for FREE.

BrightOcular has an estimated time frame of European approval of 18-24 months to treat medical conditions.  Next step would be filing with the FDA and bringing this popular procedure to the United States.

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Lastest Albinism auctions

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Albinism eBay auctions you should keep an eye on:

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Struggle to protect East Africans living with albinism against culture of

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Struggle to protect East Africans living with albinism against culture of
In East Africa, ritual magic, witchcraft and superstition play a large part in the everyday life of many people. One of the darkest elements of the cultural practice includes the lucrative trade of body parts of people with albinism who are outcast and …
Read more on ABC Online

Seeking refuge for young persons with albinism in Tanzania
From 2007 to 2010, Tanzania saw record numbers of killings and attacks against persons with albinism. An estimated 1 in 1,400 persons in Tanzania and East Africa has albinism, a genetic disorder that results in pale skin, hair and eyes, and which …
Read more on Washington Post

Living With Albinism Can Be Difficult

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Living With Albinism Can Be Difficult

Every individual is born with some color to the body, skin, and hair and eyes unless they are a victim of albinism. Our color is created by the melanin production in the body and if this is absent or there is very little of it then this affliction is the result. The cause of this condition is believed to be genetic.

There are actually two main types of this condition. It’s not difficult to figure out which individuals have this problem because you will see that they have white or even a pink tinge to their hair as well as their skin and the color of their eyes may be affected. In addition, they will have vision problems as well.

Then there is another type that only affects the back of the eyes, which is the iris. This may not be noticeable by the average onlooker but an eye exam will reveal it. This examination will show that there is no color present.

There are other conditions as well that can cause lack of color in the skin for example some people may have to small areas that don’t have any skin color. Persons suffering from Albinism will have at least one of the symptoms. This could be no color found in the hair or the iris of the eye or the skin. Alternatively, it could just be that their hair and/or skin is noticeably lighter than what would be found in the average person..

Then there is the patches that have no skin color to them at all. There are some side effects to this condition where quite often, the individual will be light sensitive or you may even notice that they have rapid eye movements and most often, they have visual problems.

Although to date there is no cure for this condition, treatment basically evolves around relieving the symptoms and watching what the side effects are. For example, a sunscreen has got to be used to avoid burning because they are very sensitive to the sun and sunglasses are also very important to relieve sensitivity to the light affecting the eyes.

Albinism does not shorten the life span of the individual unless they are suffering from some types that can cause lung problems are bleeding problems. Although people with this condition can function normally, there are many daytime activities they cannot participate in because they can’t stand the sun. Two possible complications could be skin cancer or decreased vision leading to blindness.

Outarow Chhuong has been involved in alternative health since 1997, and is currently writing health articles related to anti wrinkle, and eye wrinkle cream.

What is albinism?

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What is albinism?
The condition is hereditary, but most children with albinism are born to parents with a normal pigmentation. If both parents possess the defective gene, there is a one in four chance their child will be born with albinism. It occurs in both sexes …
Read more on Deutsche Welle

Ritual Killings of People With Albinism Increase in Tanzania
GENEVA—. United Nations human rights officials report a spike in ritual attacks and killings of people with albinism in Tanzania. They are calling for greater protection for these people who face a dire situation and are extremely vulnerable. The U.N …
Read more on Voice of America

Vancouver albinism activist addresses UN 5:21
Vancouver albinism activist Garth Mullins spoke at a special event for UN delegates in New York City this week, supporting the delegates' move to proclaim an International Albinism Awareness Day. June 13th will now be the day to bring attention to the …
Read more on CBC.ca

Lastest Albinism auctions

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Most popular Albinism eBay auctions:

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Living With Albinism

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Living With Albinism

John, a West African living near the border between Benin and Nigeria, has albinism-a genetic disorder in which one’s eyes, skin, or hair (in some cases one’s eyes alone) have little or no pigmentation. What are the type of albinism we have? How widespread is albinism? How does it affect individual’s daily life? What can help those with albinism to live with their condition?

While albinism is most perceptible among dark-skinned people, races, and peoples. It is estimated that albinism affects 1 out of every 20,000 persons.

Some Types Of Albinism

The main categories of albinism include the following:

“Occulocutaneous albinism: The pigment melanin is missing from the skin, the hair, and the eyes. There are about 20 variants of this type.

“Ocular albinism: Its effects are limited to the eyes and hairs usually appear normal.

There are many other forms of albinism that are well-known. For instance, one type is associated with Hermansky-Pudlak Syndrome (HPS). Those with HPS have a tendency to bruise or bleed easily. There is a high concentration of this type of albinism in the Puerto Rican population, where the frequency to be 1 to 1800 of the population.

Effects On Skin and Eyes

For most light-skinned people, wild exposure to the sun results in a tan when a pigment called melanin is produced to protect the skin. Without pigment, an albino’s skin is easily sunburned. Sunburn in itself is an unpleasant and painful condition. However, albinos who do not sufficiently protect their skin also risk developing skin cancer. This is especially so in tropical areas.

Albinism can also affect the eyes in the variety of ways. Pigment in the iris normally screens sunlight entering the eye, other than through the pupil. However, an albino’s iris is nearly translucent, which allows stray light to pass through it and cause irritation.

Through commonly thought that people with albinism have reddish eyes, but this is a misconception. Most albinos have irises tinted either dull gray, brown, or blue. This reddish reflection comes from retina. This effect might be compared with red-eye, the reflection in the eyes that sometimes appears in photographs taken with a flash. In many countries, therapy is either not available or very expensive.

SOCIAL CHALLENGES

Most people living with albinism learn how to live with their physical limitations. Many, however, find it difficult to endure the social stigmatization that comes with the condition. This can be especially challenging for children.
In some parts of West Africa, children with albinism are jeered or mocked with racist expressions. This can easily lead to feelings of rejection and uselessness.

THE END OF ALBINISM

In recent years, much has changed in the treatment of albinism. Medical science is able to provide more assistance than ever before. Self-help groups offer a forum for exchange experiences and improving understanding of the condition. The ultimate solution however, rest not with man but with his or her creator (God).

For additional info,visit http://www.publichealthawareness.blogspot.com